April 29, 2021 by Patricia Silva, PhD Rare Symptoms of MS: 12 Things to Know About Trigeminal Neuralgia Trigeminal neuralgia is a term used for facial pain associated with damage to the trigeminal nerve, or the 5th cranial nerve ā the largest one among the body’s 12 pairs of cranial nerves and one of the most widely distributed nerves in the head. Usually occurring in people older…
April 28, 2021 by Patricia Silva, PhD 7 Strange and Unusual Symptoms of Multiple Sclerosis Multiple sclerosis (MS) is a disease that is unique to each patient, meaning that no two people experience the exact same disease manifestations. While there are common symptoms that many MS patients share, such as pain and chronic fatigue, some may experience more unusual symptoms. Seven of…
June 29, 2018 News by Patricia Silva, PhD Updated ‘My MS Manager’ App Now Offers More Features, MSAA Announces The Multiple Sclerosis Association of America (MSAA) recently launched a new version of the My MS Manager, a mobile app designed to provide convenient services to the multiple sclerosis (MS) community. The app is powered by @Point of Care and is available as a free download…
June 18, 2018 News by Patricia Silva, PhD MSAA Expands Financial Aid Fund for MRI Scans to Meet Growing Demand TheĀ Multiple Sclerosis Association of AmericaĀ (MSAA) announced that it will expand its MRI Access Fund to help meet the growing demand for magnetic resonance imaging (MRI) tests within the multiple sclerosis (MS) community. The fund is designed to help cover the costs of brain and spinal MRI scans…
June 14, 2018 News by Patricia Silva, PhD MyoPro Powered Arm Brace Now Available for Teens with MS or Injuries, Myomo Announces Myomo, a wearable medical robotics company, announced thatĀ MyoPro ā its myoelectric orthosis or powered brace ā is nowĀ available for use by teenagers with paralyzed or weakened arms due to injuries or neurological disorders such as multiple sclerosis (MS). MyoPro is a lightweight wearable device that helps restore functionality…
June 13, 2018 News by Patricia Silva, PhD MMJ Bioscience Files Request with FDA to Open Phase 2 Study of Medical Cannabis in Progressive MS MMJ Bioscience, which specializes in medical cannabis products, has filed a request with the U.S. Food and Drug Administration (FDA) to open Phase 2 clinical trials evaluating the companyās THC/CBD pharmaceutical compounds as possible treatments for symptoms ofĀ multiple sclerosis (MS). THC refers to the tetrahydrocannabinol compound, part of the…
June 11, 2018 News by Patricia Silva, PhD BIIB098 Showing Ability in Studies To Be Easier on GI Tract Than Tecfidera, Earning Alkermes $50M from Biogen Alkermes announced that it has received a $50 million payment from Biogen after a review of preliminary data related to theĀ gastrointestinal tolerability ofĀ BIIB098 (diroximel fumarate), now in pivotal clinical studies as a possible treatment for relapsing forms of multiple sclerosis (MS). BIIB098, formerly known as ALKS 8700…
June 8, 2018 News by Patricia Silva, PhD Workplace Dress Codes Can Limit Opportunities for People with Disabilities, Researchers Say Researchers at the University of MissouriĀ found that a lack of appropriate clothing designed for people with disabilities, caused by accidents or chronic diseases like multiple sclerosis (MS), can be a barrier to participation and a sense of inclusion in the workplace. Because workplace attire can be specific and…
June 4, 2018 News by Patricia Silva, PhD PathMaker Neurosystems, Developing MyoRegulator for Spasticity, Named Startup of Year at French-American Business Gala PathMaker Neurosystems, which specializes in non-invasive devices to treat chronic neuromotor disorders, won theĀ 2018 French-American Business (FAB) AwardĀ in the startup/small company category. PathMaker, based in Boston, is developed and testingĀ MyoRegulator, a potential treatment forĀ muscle spasticity in people withĀ multiple sclerosis (MS), cerebral palsy and other chronic conditions.
June 1, 2018 News by Patricia Silva, PhD MS Groups Working to Advance Patient-Reported Outcomes in Research, Patient Care and Treatment Development Two groups working to collect and promoteĀ patient-reported outcomes (PROs) in research and treatment forĀ multiple sclerosis (MS)Ā announced they will jointly explore ways to “standardize and harmonize” these measures so as to make them more effective. The effort brings theĀ iConquerMS People-Powered Research Network, managed by the nonprofitĀ Accelerated Cure Project…
May 30, 2018 News by Patricia Silva, PhD With Support of AARDA, Autoimmunity Institute Aims to Better Understand and Treat Diseases Like MS The American Autoimmune Related Diseases Association (AARDA) is partnering with Allegheny Health Network (AHN) and its newly openedĀ Autoimmunity InstituteĀ ā based in Pittsburgh, Pennsylvania ā to study the costs of autoimmune disease to patients in the U.S., including that of just getting a correct diagnosis. AARDA, a non-profit that…
May 29, 2018 News by Patricia Silva, PhD North Carolina Couple Donate $20,000 to Discovery MS Initiative at Murdock Research Institute A North Carolina couple living with multiple sclerosisĀ haveĀ raised more than $20,000 so far this year to supportĀ Discovery MS, a nonprofit research initiative that is part of Duke University’s School of Medicine. Specifically, the money will support program effortsĀ to improve MS diagnosis and prognosis, gain a clearer understanding…
May 22, 2018 News by Patricia Silva, PhD Thomas Jefferson University Opens Registry for Patients Using Medical Marijuana The Lambert Center for the Study of Medicinal Cannabis and HempĀ has launchedĀ mmj.org, an initiative to advance the scientific communityās understanding of medical marijuana and its derivatives through the creation of a comprehensive national patient registry. The Thomas Jefferson UniversityĀ center registry aims to enrollĀ 100,000 medical marijuana patients…
May 18, 2018 News by Patricia Silva, PhD National MS Society Welcomes Mud-Lovers to 2018 MuckFest MS The National Multiple Sclerosis Society is inviting all mud-lovers to Saturday’s kickoff ofĀ MuckFest MSĀ in Boston, Massachusetts, which raises money and awareness for multiple sclerosis (MS). The event includes a 5K āmud runā with āoutrageous obstacles and a whole lot of mudā thatĀ definitely will make you sore āfrom…
May 16, 2018 News by Patricia Silva, PhD 4 Relapsing MS Treatments Added to UK Health Service After Cuts to Prices Agreed After an agreement to lower their prices, four treatments for relapsing multiple sclerosis āĀ Biogenās AvonexĀ and Merck KGaA‘sĀ Rebif (both interferon beta-1a), Novartisā ExtaviaĀ (interferon beta 1b), and Tevaās Copaxone (glatiramer acetate) ā were recommended as cost-effective and long-term therapy options within the National Health Service…
May 15, 2018 News by Patricia Silva, PhD #CMSC2018 – Julie Roberts, Country Music Singer and MS Advocate, Performing at CMSC Meeting Julie Roberts, a country music singer and multiple sclerosis (MS) patient advocate, will perform at the upcomingĀ Consortium of Multiple Sclerosis Centers (CMSC)ās annual meeting,Ā the association announced Roberts, diagnosed with MS while making her second recording in 2005, will also attend CMSC sessions to learn more about…
May 11, 2018 News by Patricia Silva, PhD Organizations Join Forces to Launch New Adventure Program for Young MS Patients Young adults living with multiple sclerosis (MS) will now be able to experience a variety of outdoor adventures thanks to a new adventure-based healing program created through a partnership between Velocity Global and First Descents. First Descents offers free trips to young cancer patients to help empower…
May 10, 2018 News by Patricia Silva, PhD Social Network for MS Patients Launched by Curatio and BioScript Solutions Curatio and BioScript Solutions recently launched a mobile patient engagement platform designed to provide multiple sclerosis (MS) patients with a way to connect, share experiences, and gain new knowledge. The private, free social network app was introduced at the recentĀ HLTH conference, which took place May 6-9…
May 9, 2018 News by Patricia Silva, PhD Canadian MS Patients, Economy Would Benefit from Improved Support Programs, Report Contends Improving financial support programs for those living with multiple sclerosis (MS) would increase workforce participation and boost economic activity, concluded a report published by the Conference Board of Canada in March, which wasĀ Multiple Sclerosis Awareness Month. Today, about 100,000 Canadians live with MS, making Canada one of…
May 7, 2018 News by Patricia Silva, PhD ‘MS from Inside Out’ Uses Vitural Reality to Show Canadians Life with This Disease For Multiple Sclerosis Awareness Month and leading up to May 30,Ā World MS Day, Ā EMD Serono, Canada, is taking a virtual reality program to three Canadian cities to help educate people about multiple sclerosis and its impact. The biopharmaceutical company wants to help people better understand what it…
April 13, 2018 News by Patricia Silva, PhD MS Foundation Partnering with ThermApparel to Provide Cooling Vests to Patients The MS Focus: Multiple Sclerosis FoundationĀ will be accepting applications through June for itsĀ Cooling Program, which providesĀ cooling garments to multiple sclerosisĀ patients whose condition has left them heat-sensitive. AlthoughĀ 60 to 80 percent of patients are heat-sensitive, there were no MS-specific cooling garments on the U.S. market until…
April 10, 2018 News by Patricia Silva, PhD Dartmouth-Hitchcock Starts Three-year Study of Ways to Improve Quality of MS Care TheĀ Dartmouth-HitchcockĀ health system is starting a three-year nationwide study of the quality of care that multiple sclerosis patients receive. It will focus on geographic differences in care and quality improvement. The project’s name is theĀ Multiple Sclerosis Continuous Quality Improvement Collaborative study. Its goal is to improve care by sharing…
April 9, 2018 News by Patricia Silva, PhD MSunderstood CafĆ© in Dublin Gives Customers Glimpse into Life of MS Patients A recent pop-up cafe in Dublin allowed customers to experience what it’s like to live with multiple sclerosis (MS)Ā to highlight the urgent need for improved access to care and treatment for MS patients in Ireland. MSunderstood CafĆ© gave customers a small taste of the challenges and symptoms MS…
April 2, 2018 News by Patricia Silva, PhD FDA Clears Mobile App for Use with L300 Go System Created to Help with Walking and Gait The U.S. Food and Drug Administration (FDA) recently cleared the myBioness mobile app, designed by Bioness, to be used with the L300 Go SystemĀ to improve muscle strength in patients with multiple sclerosis (MS) or other conditions that affect walking. The L300 Go System is approvedĀ to help…
March 26, 2018 News by Patricia Silva, PhD United Spinal Plans Webinar on Making Flying Better for Wheelchair Users The United Spinal AssociationĀ will hold a webinar this week to seek ideas for making air travel better for wheelchair users, including multiple sclerosis patients. One focus of the event will be the problems wheelchair users have encountered at airports. AnotherĀ will be bills in the U.S. House and Senate…
March 23, 2018 News by Patricia Silva, PhD Consortium of Multiple Sclerosis Centers Puts Together a Special MS Month Agenda The Consortium of Multiple Sclerosis Centers (CMSC) is partnering with a number of organizations duringĀ Multiple Sclerosis Awareness Month in March toĀ provide education, research and services to the MS community. CMSC is a non-profit organization that provides educational programs and resources to MS professionals, healthcare providers, researchers and the…
March 22, 2018 News by Patricia Silva, PhD Symbiotix Obtains Access to Harvard Material That Could Help It Develop MS Therapies Symbiotix BiotherapiesĀ has gained access to Harvard UniversityĀ material thatĀ could help it develop treatments for autoimmune and inflammatory diseases like multiple sclerosisĀ and inflammatory bowel diseases. It obtained access to the intellectual property, much of which deals with gut bacteria, under a licensing agreement with Harvard. Intellectual property typically includes…
March 21, 2018 News by Patricia Silva, PhD American Brain Foundation Starts Crowdfunding Campaign to Help Fight MS The American Brain FoundationĀ has started a crowdfunding campaignĀ to support research that could lead to treatments forĀ multiple sclerosisĀ and other autoimmune and inflammatory diseases. Foundation officials said the fundsĀ will help facilitate the work of Steffen Jung, head of the immunology department at the Weizmann Institute of ScienceĀ in Israel.
March 20, 2018 News by Patricia Silva, PhD GeneFo Guide Explains How Medical Cannabis Can Help MS Patients More studies are showing that medical cannabis can alleviate symptoms of multiple sclerosis (MS), according to a company that helps patients, doctors and others understand genetic conditions better. The observation came inĀ GeneFo’sĀ 2018 Guide to Clinical Effects of Medical Cannabis. Some research has suggested that cannabis strains containing…
March 16, 2018 News by Patricia Silva, PhD National MS Society-supported Study Looking into How Disease Affects Children’s Thinking A researcher at theĀ University of Alabama at Birminghamās School of NursingĀ will help to lead a national effort into how multiple sclerosis (MS)Ā affectsĀ the cognitive skills of children. Yolanda Harris is the UAB principal investigator in a study assessing how MS impacts the way children make decisions. Titled ā…